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Huntington's Disease Caregiving

A Practical Guide: Nutrition and HD & Resources
What Is A Caregiver?
What Is An HD Caregiver?
Caregiving For A Spouse
Caregivers Bill of Rights
Helping Your Loved One
Your pHD Is Unique!
About Huntington's Disease
HD Articles of Interest
HD Guidebooks
Post Emergency Info
Early/ Early Intermediate Stages
Late Intermediate Stage
Swallowing Diagnostic
Speech & Language in HD
Swallowing Safety in HD
Early Advanced Stage
Swallowing Difficulties~Physician's Guide
Warning Signs of Swallowing Problems
Swallowing, Coughing, Choking & Pneumonia
Swallowing~Giving Medication
A Practical Guide: Nutrition and HD & Resources
Diet & Nutrition in HD
Nutrition and Huntington's Disease
Nutrition Information for the Care Giver
Texture & Consistency/Thining & Thickening Foods
Drinks/Shakes Recipes
Adaptive Equipment-Mealtime Help
Food Thickners
What Is A Feeding Tube?
When To Consider A Feeding Tube
Feeding Tube Decision in HD
Feeding Tube Resources
Advanced Stage
Late Stage Care
Commom Problems Encountered~Hospice Care
Temporary List of Resources
Personality Issues
Legal Issues
Disability Issues
At Home Care
Outside Care
Caregiver Tips
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 Nutrition and Huntington's Disease,
A Practical Guide.
Additional Resources
Book:   Nutrition and Huntington's Disease, A Practical Guide.

Ellen van Broekhoven (dietician), Dirk Gaasbeek (nursing home physician),
and Maartje Veninga (speech therapist) work in a nursing home with a special unit for patiens suffering from Huntington's Disease. They discovered that there were no ready answers to questions in relation to, in particular, nutrition for patiens suffering from this disease.

It is for this reason that they decided to pool their knowledge and experience into a very practical guide and to supplement it with information from the skimpy scientific literature on this subject.

The book provides insight into the nutritional problems that exist among patients suffering from this disease from the point of view of various disciplines. With that, it appears time and again that communication, i.e. to understand what the patient wants and to which degree it is possible to discuss problems of vital importance. That is why communication comes up extensively. Another question that is raised is whether or not tube feeding may be a good alternative if regular feeding is no longer possible.

What makes this book so unique is that it serves as a comprehensive guide for medical practitioners and paramedics.

In this recommendation, Prof. Dr. H.P.H Kremer, neurologist, says: "I warmly recommend this book to those who, either in their work or in the family, have to deal with patients suffering from Huntington's Disease. This is the first practical publication in this field and I hope it will inform and inspire many people."
Free Consumer Brochures Examine Swallowing Disorders (ROCKVILLE, MD-May 1, 2001) Two new brochures focusing on swallowing disorders are available free of charge to consumers from the American
Speech-Language-Hearing Association (ASHA).

"Feeding and Swallowing Problems in Children" and "Swallowing Problems
in Adults" discuss some of the causes and symptoms of swallowing disorders, or dysphagia, as well as how swallowing problems can lead to poor nutrition, dehydration, or pneumonia in both children and adults.
The brochures also examine the different phases at which problems can occur in the swallowing process, from difficulty chewing or moving food or liquid from the mouth to the throat, to problems in squeezing food through the esophagus.
In addition, the brochures address the role of the speech-language pathologist in evaluating and treating dysphagia.

Consumers can receive the brochures by calling ASHA's toll-free HELPLINE
at 1-800-638-8255. Consumers may also view the brochures online, as well as obtain referrals to qualified speech-language pathologists and access additional  information on speech, language and hearing development and disorders, by visiting the ASHA website at